Monday, November 30, 2009

Covering the USA / the World with Jonah's Magnets

(This posting changes daily and will usually be at the top of this page)
Epidermolysis Bullosa
(Click above to learn about EB)


- More Money

- More Awareness



Matt, Patrice and Jonah Williams
Mother's Day, May 10th 2009
"If only there were more money and more awareness... let's get this train a movin'. These kids need help." Patrice Williams, Jonah's mother on Friday May 8, 2009
Jonah's Support Group is established to fulfill Patrice's charge and to accomplish her goal. If you don't know about Jonah, find the details on the right side of this page. Please check out our current campaign below and help "Cover the USA and the World with Jonah's Magnets".

All red colored states have orders for Jonah's magnets. Blue is the leader! Sorry Hawaii and Alaska, the map we found to do this didn't include you but we will list you below. Please participate!

$10.00 Each


The proceeds will be used for Jonah's care and 10% will be donated to the Dystrophic Ep
idermolysis Bullosa Research Association of America to fund the search for a cure. See our goals and commitments


The actual magnet is 5" diameter.

Don't care for blue? Wake Fan? See the Black and Gold

Can we cover the USA and the World with Jonah's magnets? It's up to YOU. States where magnets have been purchased are marked above . Is your state included? Magnet sales by state and country are ranked below. Where does your state or country rank? Are you doing your part? Please order or help sell magnets NOW. Sales locations are based on shipping address for online sales and locations of sales of consignments.

The United States of America

As of November 20, 2009

244 - North Carolina
47 - New York
28 - South Carolina
26 - Florida
19 - Pennsylvania
11 - Texas
11 - Virginia
10 - Tennessee
8 - Alabama
8 - Georgia
8 - Maryland
4 - Colorado
4 - Kansas
3 - California
3 - Illinois
3 - Washington
2 - Arkansas
2 - South Dakota
2 - Oklahoma
2 - Oregon
2 - Maine
2 - Minnesota
2 - Missouri
2 - New Jersey
2 - Utah
2 - Wisconsin
1 - Arizona
1 - Connecticut
1 - Idaho
1 - Iowa
1 - Kentucky
1 - Michigan
1 - Mississippi
1 - Ohio
1 - West Virginia

The World

How about the rest of the World? Jonah needs your support as well.


Rank of countries outside of the US where Jonah's magnets have been purchased.

6 - Scotland - United Kingdom (included a donation)
2 - Australia
1 - England (Oxford) United Kingdom
1 - Spain



The actual magnet is 5" diameter.


Don't care for blue? Wake Fan? See the Black and Gold

The proceeds will be used for Jonah's care and 10% will be donated to the
Dystrophic Epidermolysis Bullosa Research Association of America to fund the search for a cure. See our goals and commitments

$10.00 Each


If you are located outside of the US and think the cost of shipping might be an issue please click on the donation button below and donate enough to cover the shipping cost. Not an issue, consider making a donation anyway. Donations are actually exceeding magnet sales. How great is that?

Tuesday, August 18, 2009

Adventures of Jonah's Magnet - Georgia

Mendy Woods sent her love from Georgia with a photo of Jonah's magnet traveling on the rear door of her van.

Mendy is a follower of Jonah's mothers blog and says that she prays continually for Jonah, Matt and Patrice. Several people have asked Mendy about this magnet which has given her opportunity to explain about Jonah, his brother Gabe and EB.

Check out on this blog how you can become part of the campaign to cover the USA and the World with Jonah's magnets and increase awareness about EB. Please send photos and stories about your experience with the Adventures of Jonah's Magnet to jonahs.support.group@gmail.com.

Saturday, August 15, 2009

Jonah Is Not Alone - EB Kids Support Jonah

Yes, EB is rare, but don't get the idea that Jonah is alone. There are many children and adults with EB in this world and we would love to share a few with you. (This posting will move to the top of the page every time we add a supporter.)

June 30, 2009 - Ella, 6 years old from Missouri and Mareyna, 5 years old from Illinois meet every every six months to travel together for a visit with their dermatologist Dr. Dyer. The three of them decided they would join in supporting Jonah and the search for a cure for EB.






June 30, 2009 - Two year old Mia from North Carolina checking out Jonah on her laptop? Mia adds her support for Jonah and all of the children with EB.





June 18, 2009 - Four year old Savana from Pennsylvania joins the kids supporting Jonah and would like for you to be more aware of EB and to help support funding for a cure.




June 11, 2009 - Six year old Alivia shows her support for Jonah and encourages you to become more aware of EB from her deck in Massachusetts.







June 10, 2009 - Five year old Ethan from Michigan and his dog Frankie add their photo with Jonah's magnet.


June 3, 2009 - Five year old Erik from Maryland adds his photo with Jonah's magnet.





June 2, 2009 - Eight month old Evan from Virginia joins our growing number of EB Kids supporting Jonah. Click (here) to visit Evan's blog.





June 2, 2009 - Fourteen week old, Leah, from Maryland, joins AJ and Weston in support of Jonah. (Addition August 15, 2009) - Check out Leah's new Blog click here.










June 1, 2009 - AJ, 17 months old, of Minnesota joins 14 year old Weston of Texas, in a show of support for Jonah.



See these children in a slide show near the bottom of this page.

Others are on the way!

If you or your child have EB and you would like to show support for Jonah by having a photo made holding his magnet please send the EB patients name, type of EB and address to jonahs.support.group@gmail.com We will mail you one of Jonah’s magnets at no cost to you. All that we request is that you e-mail a photo with the magnet back to us. We will be showing these photos in a slide show at the bottom of this blog. We would love for you to participate along side of Ella, Mareyna, Dr. Dyer, Mia, Savana, Alivia, Ethan, Erik, Evan, Leah, AJ and Weston.

Learn why Weston is our hero (click here)

Note: Our goal is to support Jonah and to ultimately be able to help support other children with EB. Please help us by purchasing one of Jonah's magnets. Then, share this information with your family and friends. Help us spread the word about EB. Click on any of these kids photos for instructions.

Wednesday, July 15, 2009

Adventures of Jonah's Magnets - Myrtle Beach



On this adventure Jonah's magnets let him come along. How great is that?




If you have been following Patrice's blog you know that 33 members of Jonah's family, on Matt's side including Jonah, spent all, or portions, of the week following the fourth of July at Myrtle Beach in South Carolina.

Here are 8 of the thirteen kids present holding up Jonah's magnets.


From left to right - Nathaniel, Nicholas, Grant, Charlie, Will, Mikey, Aliana and Abby. Missing from photo are Anna Kate, Jack, Jake, Coleman and the youngest Jonah. Relations to Jonah are confusing. Three are cousins, three are children of one of Matt's Uncles, six are grandchildren of another of Matt's Uncles. Six of the thirteen are my grandchildren. I wasn't present. Now, can you figure it out? You can see the balance of the children and adults in postings with links below the video.



Here are links to Patrice and Katherine's blog about the vacation:

Patrice's blog:

cheese and rise that's a lot of stuff
desde la playa
independence day
pictures from yesterday
williams suffers scrabble defeat
family photos on the beach

Katherine's blog:

Happy 4th to one and all
Just another day in paradise
The fun continues
Still having fun in the sun, or under the overcast sky...one or the other
It's all down hill from Wednesday
Trying to pretend it's not Thursday
And now, we mourn the end of the week
Goodbye, beach

All of our family grew up visiting Myrtle Beach. Here is a neat walk through 100 years of Myrtle Beach history.



Where will Jonah's magnet show up next? Will there be other visits in the United States? Is one visiting with you? You can help (click here).

Visit to the Myrtle Beach Courtesy of Matt's Aunt Katherine (Visit Kat's blog by clicking here)

Photos of all the adventures of Jonah's magnet are in a slide show near the bottom of this page.

Tuesday, July 14, 2009

Adventures of Jonah's Magnets - Florida Keys

Jonah's magnet makes a visit to the southern most point of the United States, the Florida Keys with Cara and her children.



You can't get farther south in the US than this:

Cara and her children with Jonah's magnet at the southern most point of the United States - Key West, Florida.

Jonah's magnet discover a city where real estate titles date back to the Kings of Spain. Strolled the palm-lined streets and discovered gingerbread mansions, tin-roofed conch houses, the John Audubon House and Ernest Hemingway's home. Walk in the footsteps of Thomas Edison, Lou Gehrig, Harry Truman, and Tennessee Williams.


Where will Jonah's magnet show up next? Will there be other visits in the United States? Is one visiting with you? You can help (click here).

Visit to the Florida Keys Courtesy - Cara Cook (Visit Cara's blog by clicking here)

Photos of all the adventures of Jonah's magnet are in a slide show near the bottom of this page.